Summary

The Research Coordinator will assist with implementation of clinical research studies for children and adults with rare genetic disorders. The coordinator will work with a team of investigators and clinical research staff and be responsible for one or more research protocols. The day-to-day activities include screening, enrollment, and monitoring of research participants as well as ensuring accurate data collection, documentation, organization and safety of research participants. As many patients with genetic disorders have no available treatments, conducting research studies and 
providing them research opportunities is a very gratifying experience. 

The research coordinator will work within the Clinical Research Division of the Department of Molecular and Human Genetics. This division has multiple staff members and Investigators who have significant experience in conducting research studies in rare disorders. The primary role of the Research Coordinator is to assist in all day-to-day activities of clinical research protocols including, but not limited to screen and enroll participants, schedule research activity, ensure accurate data collection, perform data entry, maintain study documents, coordinate biospecimen acquisition, and ensure the organization and safety of study participants.

Job Duties

1. Patient Information and Consent

• Interview, screen, and recruit patients for research studies, ensuring participants understand the study process and procedures.
• Educate participants about the research study and obtain informed consent.
• Document and maintain informed consent forms and all research/IRB study documentation.

2. Study Implementation

• Schedule research visits and accompany patients during study procedures.
• Assist with the collection and processing of biospecimens.
• Retrieve and submit test results to the appropriate parties as outlined in the research protocol.

Other Duties

• Perform additional job-related tasks as assigned.

Minimum Qualifications

• Bachelor's degree in a related field. Four years of related experience may substitute for degree requirement.
• Two years of relevant experience.

Preferred Qualifications

• Leadership or project management experience is preferred.
• Clinical research study design experience.
• Human research subject experience.
• Ability to work collaboratively within a multidisciplinary team.
• Detail-oriented with excellent organizational and documentation skills.
• Comfortable managing multiple tasks and protocols simultaneously.
• Requires occasional flexibility for meetings and study-related activities.